What do lymphedema patients expect from a treatment and what do they achieve? A descriptive study

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dc.contributor.authorYıldız, Elif Duygu
dc.contributor.authorBakar, Yeşim
dc.contributor.authorKeser, İlke
dc.date.accessioned2023-03-22T19:47:42Z
dc.date.available2023-03-22T19:47:42Z
dc.date.issued2022
dc.departmentBelirleneceken_US
dc.description.abstractPurpose: Lymphedema is characterized by swelling and fibroadipose tissue deposition that is a physically, psychologically, and socially debilitating condition due to chronic and progressive nature of the disease. Treatment benefit evaluation from the patient's perspective is important for medical decision-making. The aim of this study is to investigate important treatment goals and benefits of treatment from the patients' perspective. Method: Eighty-one patients with lymphedema, lipoedema, or lipolymphoedema who are currenlty treated or who underwent previous treatment were included in the study. Socio-demographic data was recorded. Important goals and benefit from treatment were assessed with Patients Needs Questionnaire and Patient Benefit Questionnaire which are sub-questionnaires of Patient Benefit Index-Lymphedema. Results: The most important expectation and needed item was To find a clear diagnosis and therapy (n:59, 72%). The least important item for the lymphedema patients was To feel more attractive (n:9, 11%). Most beneficial effect of treatment was To have no fear that the disease will become worse (n:37, 45.7%). To have fewer out of pocket treatment expenses was rated as the least beneficial effect of treatment (n:24, 29.6%). Conclusions: It is important to identify patients' needs and expectations. Patients should be referred for treatment according to their needs. The effectiveness of the treatment should be evaluated objectively. Patient education should be considered as a part of the effective treatment to teach patients how to control their lymphedema. A clear diagnosis and access to treatment should be ensured for lymphedema patients. Regulations for health insurance benefit coverage are needed to cover cost of compression garments.(c) 2022 Society for Vascular Nursing, Inc. Published by Elsevier Inc. All rights reserved.en_US
dc.identifier.doi10.1016/j.jvn.2022.01.002
dc.identifier.endpage65en_US
dc.identifier.issn1062-0303
dc.identifier.issn1532-6578
dc.identifier.issue1en_US
dc.identifier.pmid35287836en_US
dc.identifier.scopus2-s2.0-85123577798en_US
dc.identifier.scopusqualityQ1en_US
dc.identifier.startpage59en_US
dc.identifier.urihttps://doi.org/10.1016/j.jvn.2022.01.002
dc.identifier.urihttps://hdl.handle.net/20.500.14034/833
dc.identifier.volume40en_US
dc.identifier.wosWOS:000778633000010en_US
dc.identifier.wosqualityN/Aen_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherElsevier Science Incen_US
dc.relation.journalJournal Of Vascular Nursingen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectCancer-Related Lymphedemaen_US
dc.subjectLower-Limb Lymphedemaen_US
dc.subjectBreast-Canceren_US
dc.subjectPsychosocial Impacten_US
dc.subjectTherapyen_US
dc.subjectDiagnosisen_US
dc.subjectLifeen_US
dc.titleWhat do lymphedema patients expect from a treatment and what do they achieve? A descriptive studyen_US
dc.typeArticleen_US

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