Hemophilia Caregiver Burden in a Low Socioeconomic Region of Turkey

Basit Öğe Kaydı
dc.contributor.authorErsoy, Gizem Zengin
dc.contributor.authorErtekin, Mehtap
dc.contributor.authorDikme, Guercan
dc.date.accessioned2024-03-09T18:48:50Z
dc.date.available2024-03-09T18:48:50Z
dc.date.issued2023
dc.departmentİzmir Bakırçay Üniversitesien_US
dc.description.abstractObjective: This study aims to evaluate the caregiver burden of parents of hemophilia patients and related factors in the southeast region of Turkey, where access to a regular healthcare facility is more complicated than in other areas.Materials and Methods: Twenty-six caregivers of patients with hemophilia were consecutively enrolled in this non-interventional study. Caregiver burden is measured using the Hemophilia -Associated Caregiver Burden Scale (HEMOCAB).Results: Hemophilia affects 65.4% of caregivers emotionally, and 92.3% feel the burden caused by financial problems related to hemophilia. The perception of the patients by caregivers was negative in the groups of low educational degree and unstable employment status (P = .037 and P = .017, respectively). The employment status and job changes influence the caregiver burden because of hemophilia (P = .034 and P = .001, respectively). The groups of those who spent greater than 5 hours for transportation to the hemophilia treatment center (HTC) had a higher burden (P = .001). Multiple linear regression analysis analyzed variables affecting HEMOCAB, frequency, and burden total scores. The model created with the burden total score was statistically significant (P = .047).Conclusion: The main factors affecting caregiver burden were educational status, working conditions, and economic difficulties, as well as the length of infusion times and transfer to HTCs. There is a need to develop socioeconomic policies related to these problems.en_US
dc.identifier.doi10.5152/TurkArchPediatr.2023.23129
dc.identifier.issn2757-6256
dc.identifier.issue6en_US
dc.identifier.pmid37818843en_US
dc.identifier.scopus2-s2.0-85175740064en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.trdizinid1239597
dc.identifier.urihttps://doi.org/10.5152/TurkArchPediatr.2023.23129
dc.identifier.urihttps://hdl.handle.net/20.500.14034/1504
dc.identifier.volume58en_US
dc.identifier.wosWOS:001135582900004en_US
dc.identifier.wosqualityN/Aen_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherAvesen_US
dc.relation.ispartofTurkish Archives of Pediatricsen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectCaregiver Burden; Socioeconomic Determinants; Hemophiliaen_US
dc.titleHemophilia Caregiver Burden in a Low Socioeconomic Region of Turkeyen_US
dc.typeArticleen_US

Dosyalar

Orijinal paket
Listeleniyor 1 - 1 / 1
Küçük Resim Yok
İsim:
1504.pdf
Boyut:
878.25 KB
Biçim:
Adobe Portable Document Format
İndir

Koleksiyon

WoS İndeksli Yayınlar Koleksiyonu
PubMed İndeksli Yayınlar Koleksiyonu
Scopus İndeksli Yayınlar Koleksiyonu
TR-Dizin İndeksli Yayınlar Koleksiyonu